Regional scope

The Edinburgh Cancer Centre cares for patients accross 4 Scottish Health Boards


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Coronavirus Cancer Monitoring Programme

Real World Data Programme

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The Edinburgh Cancer Information Programme


The Edinburgh Cancer Informatics Programme uses methods in Data Science to implement a “rapid-learning system for cancer care”. The rapid-learning comes from the healthcare system being able to keep itself constantly informed on how it is affecting patient care through use of real world data for real world evidence generation.

The University of Edinburgh Institute of Cancer and Genetics (IGC), the Cancer Research UK Scotland Centre (CRUK) and the Edinburgh Cancer Centre (ECC) are working together to use data and information systems in new ways for this purpose.

The ECC provides comprehensive cancer care for the South East Scotland Cancer Network (SCAN), serving patients within the 4 regional Health Boards – NHS LothianNHS FifeNHS Dumfries and Galloway and NHS Borders.

The Edinburgh Cancer Information Modernisation Programme commenced in 2015 and has improved access to cancer patient data to support service planning, quality improvement and research to improve outcomes for our patients.

The programme is delivering a world class resource for use in collaboration with national analytical partners, researchers and Scottish Government’s Innovative Healthcare Delivery Programme in association with Health Data Research UK. Research is facilitated by close working with the DataLoch. 

We use tools like R for data science, the Python programming language, Trello for project management and GitHub for code sharing. ECi is an EHDEN data partner, mapping to the open data OMOP standard (OHDSI). We are part of the HDR UK Hub for Cancer DATA-CAN. 

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