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Standards for Real World Evidence Studies

We believe that independance and transparency are a central requirement for the valid generation of Real World Evidence. This special issue of Value in Health highlights some of the issues. https://www.valueinhealthjournal.com/issue/S1098301520X00118

Creation of the first national linked colorectal cancer dataset in Scotland

Prospects for future research and a reflection on lessons learned: The Bowel Cancer Intelligence UK Hub are working with Public Health Scotland and the University of Edinburgh to make Health Data available and research ready for the colorectal cancer research community. This webinar summarises the project and future opportunities. This introduces the paper sumarising the […]

Lung cancer admission patterns during the pandemic

Data from a single-center study in Scotland suggested that there were more patients with lung cancer admitted acutely with cancer, non-COVID-19-related illness during the COVID-19 pandemic. “Early and late lockdown were characterized by a reduction in self-presentation and longer resulting admission suggesting that patients were admitted with more complex pathology and consequently had longer admission,” […]

SCRIS: An update on the Scottish Cancer Registration and Intelligence Service

Public Health Scotland webinar, SCRIS: How data is helping support improved cancer care services in Scotland’, took place on the 18 January 2021 and featured presentations from speakers involved in the implementation, delivery and use of the SCRIS project. Full details on the PHS website. Watch the presentations again: Professor Aileen Keel CBE – SCRIS: […]

The Edinburgh DataLoch is making health data available for research

DataLoch is a repository of linked health and social care administrative data sets from Edinburgh and the South East of Scotland. Edinburgh Cancer Informatics is working closely with the DataLoch team to make cancer data accross the region available for research. Read a good summary the DataLoch on the eCRUSADers blog https://ecrusad.co.uk/2020/12/03/dataloch/#q1

Healthcare cost trajectories during the last year of life

A national population administrative secondary care data linkage study People who are nearing the end of life are high users of hospital services. The absolute cost to providers and its value  is uncertain. There is a need to identify which groups of people spend a lot of time in hospital so that care can be […]

NHS PREDICT – R Package

Data Scientist Giovanni Tramonti has produced an implementation of the NHS Predict decision tool for batch processing. Available on the R CRAN. This is useful for producing a patient-level mortality risk estimate from breast cancer staging information. https://cran.r-project.org/web/packages/nhs.predict/index.html

Cancer PROMs pilot project with My Clinical Outcomes

SCAN, the South East Scotland Cancer Network, has been awarded funding from the Cancer Innovation Challenge to trial an implementation of a regional platform for PROMs and PREMs in cancer care in South East Scotland. SCAN will be working with CIC Phase 2‘s My Clinical Outcomes. The project kick off meeting took place on 5 August 2019 and […]

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